Just when you think your in the clear

In January of this year we once again traveled to Cincinatti Children’s for Sophia’s check up. Something we greatly look forward to... we get to see the Doctors that have gotten Sophia to this point and get to stay in our home away from home... the Ronald McDonald House. This trip was different though... at the end of the check up we heard words we never expected. The cartiology team told us that not only was Sophia doing well... but they also realeasef her from needing more check ups there.  It was wonderful news... and to the same time... it was difficult to have our connection with this great place severed.  We have been so blessed in being able to have All of the staff at Cincinatti Children’s and the Ronald McDonald House help us though Sophia’s journey. Coming back and visiting is something we will truly miss. Don’t get me wrong, we feel totally blessed that Sophia is doing spectacular... it’s just a really special place in our hearts.

Despite the great news and release in January...July 2018 marked a scary return to hospitals.  Sophia wound up with a bowl blockage. We went to our local hospital and was shipped odd to U of M’s Mott Children’s Hospital. The experience was very scary. Sophia bravely faced orrible pain and a very uncomfortable NG tube.  We had a 5 day stay but luckily the blockage started to work through without surgery!  It was several days of thinking just when we thought she was in the clear... she would nd up in the hospital again.  CDH May have been fixed.. but the journey continues.