Sophia is doing well after a long day on Friday. She now has a button style g-tube. But let me tell ya waiting for surgery is about as painful as waiting for paint to dry and water to boil. Especially when you are at a new hospital with doctors and nurses you don't know. Everything went very well and all of the people we encountered were very nice, but we definitely missed Cincinnati Children's. Prep for the surgery started at 4:30 am with Sophia's last feeding before surgery. The feeding ended at 5:30. We gave her a bath at 7 a.m. grabbed a quick bite to eat and headed to Saginaw. We arrived right on time at 10 a.m. Her surgery was scheduled for 11:15 but we did not get in there until around 12:15-12:30. Her surgery was literally 15 minutes or less but with recovery in post op and in a regular recovery room we did not get out until about 2 p.m. She got her first feeding at 3 p.m. She was pretty tired from the sedation medicine but did really well with the whole thing. The nurses also could not believe what a wonderful disposition she has and that she had such a rough start, because she looks so healthy.
Patrick and I were really excited about the new g-tube thinking that it would solve all of our woes with the malencot. What we learned is that there was quite a difference between the two and that we had a lot to learn. With three days past since surgery we have come to like the new set up but we have not worked all of the kinks out yet. Getting the new tube was kind of like getting a new car. You like it but you are not sure about all of the new features and you are nervous about breaking things. I once again have to reiterate to myself that Feeding is the hardest part. Sophia has been making baby steps with oral feeds, she has taken around 6ml in drops from a bottle, is accepting positive touches around her mouth and really sucks on the pacifier at night. We had our first visit with the Speech Therapist today and we showed her how we have been working with Sophia and she said to keep up the good work and also gave us some additional tips. Tomorrow we go to Physical Therapy (PT) and the home health nurse will stop in. Wed and Thurs are Dr appt free and Friday we go back to PT.
Sophia also got to meet amd spend time with her Auntie Jill and Unclie Chuck from Minnesota this weekend. It was really nice to see them and have them stop in while on vacation celebrating their 40th wedding anniversary.
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