Monday, August 30, 2010

Happy Five Months Sophia!

Today marks another milestone for Sophia. Sophia has now been home from Cincinnati just as long as she stayed in the RCNIC in Cincinnati and I think she has loved every moment home despite having acid reflux/getting sick issues. This weekend she dressed to the hilt as a fairy and attended the Michigan Renaissance Festival. She was a huge hit, steeling the show once again. She was even noticed by the Queen herself and she received a very touching blessing from the Queen. It was almost like the Queen sensed that Sophia had been through a lot. Sophia also enjoyed watching her brother eat a huge turkey leg at the "REN" fair. It was so big that mommy and daddy had to help and they were all full as well before it was all gone. Maw Maw and Paw Paw also went to the fair, it was really warm but we all had a really good time.









Liam and Sophia also helped build their new Playscape in the backyard the past two weekends. Although Sophia is too little for most of it now she'll enjoy it a lot when she is older.
Health wise Sophia is doing well. Last week she weighed in at 14.8. Her Prevacid has been upped again to a 15mg tab a day (two 1/2 tab doses). It is our hopes that the Prevacid will help her stop throwing up. She is seeming to do better as she gets used to the new dosage.
She still is not eating by mouth. She has no interest in the bottle and really does not have much interest in rice cereal off a spoon but we keep trying. On a daily basis I remember back to when one of our wonderful nurses said eating is the hardest part. Although for most of us eating seems simple... eating is one of the most complex things we as humans do. Sophia will indeed get there it will just take a little time.

























Bye bye for now


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