It has been 5 years since we came home from the Hospital with Sophia. Things these days are quite normal compared to how our journey with Sophia started. We are very blessed with how everything has turned out, but it certainly has taken a a loving and caring Tribe to get Sophia to this point. We have had wonderful, caring Doctors, Nurses, Pt and Speech Therapists not to mention the support from family and friends.
To date Sophia has had 6 procedures: Her initial CDH Hernia repair, Her second surgery (removing her appendix, adjusting her bowels, Nissen and G-tube) Third replacing the first monocot G-tube with a button G-tube). Fourth, Dental Surgery to repair teeth with damaged enamel, 5th Cardiac heart cath, Sixth Removal of her tonsils. She is a tough little cookie.
Through all of this one thing that we continue to believe to be important is to just let her be Sophie, She runs and plays and jumps and hugs just as any other kid, Sure there were times that that was difficult (like when she rode down slides and play on playgrounds and we worried that her g-tube would be pulled out) but we wanted to instill in her and her brother that there is nothing that they can't do (unless its naughty of course :))
At this point she has recovered fully from CDH (with a slightly diminished lung capacity, but a kids with asthma would have that so we say fully recovered.)
Life Is Good!
It has been 5 years since we came home from the Hospital with Sophia. Things these days are quite normal compared to how our journey with Sophia started. We are very blessed with how everything has turned out, but it certainly has taken a a loving and caring Tribe to get Sophia to this point. We have had wonderful, caring Doctors, Nurses, Pt and Speech Therapists not to mention the support from family and friends. 
To date Sophia has had 6 procedures: Her initial CDH Hernia repair, Her second surgery (removing her appendix, adjusting her bowels, Nissen and G-tube) Third replacing the first monocot G-tube with a button G-tube). Fourth, Dental Surgery to repair teeth with damaged enamel, 5th Cardiac heart cath, Sixth Removal of her tonsils. She is a tough little cookie.
Through all of this one thing that we continue to believe to be important is to just let her be Sophie, She runs and plays and jumps and hugs just as any other kid, Sure there were times that that was difficult (like when she rode down slides and play on playgrounds and we worried that her g-tube would be pulled out) but we wanted to instill in her and her brother that there is nothing that they can't do (unless its naughty of course :))
At this point she has recovered fully from CDH (with a slightly diminished lung capacity, but a kids with asthma would have that so we say fully recovered.)
Life Is Good!
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