she's a growing

I am happy to report that Sophia is doing really well at home. We are all getting use to being here and things are starting to feel a little more normal...although I keep having this thought in my head that we should keep her cooped up because she is sick. But that is simply not the case, Sophia is not sick, in fact she really is thriving she is up to 11lbs 4oz and is smiling more each and every day. I think because she does have the g-tube and is fed through it my mind says she is sick, I keep telling myself that she is not sick she just eats differently...and for that matter we are working each and every day to slowly teach her how to eat the more typical way. I cant remember now if I explained what exactly the g-tube is. So here it goes. Her g-tube also called a malencot is a rubberized tube that goes through her skin to her stomach. Six weeks after surgery it should be fully healed and we will be heading to a surgeon in Saginaw MI to have the malencot switched out to one called a button g-tube. This is not a OR surgery, it can simply be done in the office and should take no more then 10-20 minutes from gathering supplies to completion. The button will be a little easier to hide under clothes. when she gets to the point that she doesn't need the g-tube anymore they will simply take it out and cover the small hole with gauze until it heals. The hole is very much like an ear piercing when you have earrings in all the time the holes stay open, when you don't wear them any more they close shut. Sophia is also going to Physical therapy to help with tight muscles in her neck which will help her turn her head from side to side and also could help with eating. She also has a home health nurse making visits on a weekly basis, she sees the cardiologist on June 28 and the surgeon on July 6. She has made more strides on eating as well she has taken as much as 6ml by mouth and today actually tried to suck on a bottle nipple.
To allow our family to have more fun this summer, I very recently sold my 73VW thing and used the funds to purchase a pop up camper. We can have lots of safe adventures in the new camper and we don't have to worry about the car seats not being installed correctly in the Thing.