When we left for Cincinnati in March we kept saying that our goal was to be home with Sophia in three months. Little did we know then that our little fighter would make it home in about 2 1/2 months. We truly are blessed with this little one, while down in Cincinnati we saw and heard a lot and know that with CDH that some make it and some don't and we saw that first hand. Sophia was the first in her class to graduate from the RCNIC. There were a few CDH babies that were born before her that will remain at the RCNIC for months yet. We truly wish them a speedy recovery. Recently I visited the website designed to help people learn and cope with the CDH Diagnosis. On the website it said that CDH is as common as cystic fibrosis and that one CDH'er is born every ten minutes. They also reported that since 2000 over a quarter of a million babies have have died from CDH. With all of this information in mind we know that we are truely blessed to have our little one and are enjoying every minute we have with her. Monday we went to the Cardiologist for a check up and found out that her pulmonary hypertension is continuing to decrease. We also have a visiting nurse who has informed us that Sophia is growing well, she is 24in long and 11lbs 13oz. Every day we work on her oral aversion...it is a very slow process...but she'll get there. She has surprised us so far and we are sure she will continue to do so.
When we left for Cincinnati in March we kept saying that our goal was to be home with Sophia in three months. Little did we know then that our little fighter would make it home in about 2 1/2 months. We truly are blessed with this little one, while down in Cincinnati we saw and heard a lot and know that with CDH that some make it and some don't and we saw that first hand. Sophia was the first in her class to graduate from the RCNIC. There were a few CDH babies that were born before her that will remain at the RCNIC for months yet. We truly wish them a speedy recovery. Recently I visited the website designed to help people learn and cope with the CDH Diagnosis. On the website it said that CDH is as common as cystic fibrosis and that one CDH'er is born every ten minutes. They also reported that since 2000 over a quarter of a million babies have have died from CDH. With all of this information in mind we know that we are truely blessed to have our little one and are enjoying every minute we have with her. Monday we went to the Cardiologist for a check up and found out that her pulmonary hypertension is continuing to decrease. We also have a visiting nurse who has informed us that Sophia is growing well, she is 24in long and 11lbs 13oz. Every day we work on her oral aversion...it is a very slow process...but she'll get there. She has surprised us so far and we are sure she will continue to do so.
She is so beautiful!
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