Sophia had a day at the Spa de rcnic today. She got her first "real" bath in a bath tub. Ok so it is really a plastic bin that they call a tub, and a little one at that. The Rcnic was all out of big tubs, but Sophia did not mind. She just sang...Big baby in a little tub, during the bath. Just before her bath her nurse removed her pic line, which is another big step. For those of you who don't remember the pic line was a tiny tube that ran through her veins to her heart that carried her nutrition (TPN and lipids). With her TPN and Lipids turned off she no longer needed the pic line. For the bath we also got to remove the monitoring sensors and capped off her g-tube. This was the first time since her birth that she has been completely wireless and let me tell ya the wireless model is a lot more mobile. I got to hold her completely wireless while her nurse did a bed change. I thought to myself while holding her, wow I could take her for a walk she is not tethered anymore. Although we did not take a walk I did spin around once just because we could.
Earlier in the day she did have an opportunity to try feeds again, she did about 5 tastes and gagged. While talking to the therapists they related how she might be feeling to... being nauseous all the time and then having some one offer you food. How many of us would like to eat if we felt nauseous all of the time? So although she did not take a volume of feeds she did try and that's baby steps forward. The doctors also discontinued her Adavan today and are once again upping her caloric intakefrom 24-26 calories per ml to help her grow.
She had a big day with the feeds and bath so shortly after she took a snooze.
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