Another big night for our little Champ

Sophia is reaching out to you for a fist bump to her good health. She has had a really good day today. Each time we went to see her she woke up for a little while and looked up at us. She also moved her little arms and legs to stretch them and one time she even shook her fist at us. Noel her physical therapist stopped by one time we were there and told us again how well she thought Sophie was doing and how amazed she was with how much Sophia still moves around. She told us that she got to work with Sophia this morning and our little Sophia was awake the whole time and tolerated being worked with very well.
This evening we got the news that the Respiratory therapist was going to take Sophia off the respiratory medicine that she was on called Flowlan. This medicine helped reduce Sophia's Pulmonary Hypertension. Since her Hypertension numbers were very favorable and she was on the lowest setting they are removing the medicine. If Sophia reacts well to that being removed they will start to wean the Nitric that she is breathing. When the Nitric is weaned her vent settings will be the next thing for them to wean, which means she is working toward not being on a ventilator. We are not sure how long it will take to get her to that point but she is on her way!