With each passing day Sophia is looking better. You can see in the picture that there is a white strip on her belly. That is where they made the incision for surgery. Above that is a slightly pink area, you might notice a black line drawn on her, the morning nurse drew the line on to have a visual of where the pink area was to make sure the color was not spreading. Since the line was drawn this morning you can already see that the pink coloration was fading. The nurse did not draw on Sophia's skin there is a large clear adhesive there and that's what he drew on.
Sophia also found her mouth today with her hands. The nurses say that this is very good because it is comforting for babies to have their hands by their mouths.
Although CDH only occurs in 1 out of 2,500 babies it is not uncommon in the RCNIC. There are three other cases here right now and more are expected in May. We have met the parents for all of the cases and it truly is amazing hearing all of the differences and we are finding out that we are truly blessed with Sophia's condition. All four of the babies have now been repaired the length of time it took for them to have their repairs ranged from 2 days to 2 months. Now that's hard to interpret because the cases in the middle seem to be the two that have less sever conditions. In speaking to one of the parents they said the doctors anticipate them having to be here for 7-12 months. Although we have not been told any dates we believe that we will be home much sooner, but only time will tell.
We are truly blessed with our little Sophia and Liam along with all of our family and friends, her wonderful Doctors and nurses and the amazing Ronald Mc Donald House and its Volunteers and Staff .
So happy to hear that Sophia's surgery went well! She looks so happy and cozy in these photos, and it is a great thing that she has found her mouth with her hand! Such a sweet thing in newborns:)
ReplyDeleteWe are prayer for her QUICK recovery! I know she can do it, after all she does have the strongest willed mommy I know! Love you guys.
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