Saturday, April 24, 2010

Food not so fun for Sophia



Food is a lot of peoples favorite things but it is not one of Sophia's or at least not yet. Today during rounds the doctors decided to try giving Sophia formula. They start this process very slowly, she is currently provided 1 milliliter of formula every hour along with the lipids that she has been getting all along. The hard part for Sophia is that her body doesn't know what to do yet once the formula is in her belly. Currently the formula is not sitting well in her belly and she has been spitting some of it up. This is not uncommon for CDH babies and like I have mentioned in other blogs feeding can be one of the most difficult parts. We are truly hoping that she will become accustomed to getting food in her belly so the doctors don't have to place the tube further in to bypass the stomach and have it placed directly in her intestine for absorption.
The good news is that although she did spit up through the day she seemed to become less aggravated about the whole thing as the day wore on.
It was a very Big day for Sophia once again, besides starting feeds, Sophia also had her Sedation levels weaned more, her new medicine to help her get off Nitric was increased, she got a bath and daddy got to hold her for a while. Daddy Patrick did very well holding her through her spit ups and despite not feeling good Sophia loved snuggling with her daddy.

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