Bath, Blood pressure and Bass?

Sophia got her first real bath today and I got to help! Up to this point Sophia had only been cleaned with disposable bath wipes and her nurse Emily believed that it would be really good to bathe our little Sophia and she said she would wait until I was around to assist. While we did not throw out little Sophia in a bath tub we did give her a sponge bath right in her bed. There were certain areas we could not get wet but for the most part she was washed toe to head. You can see from the picture that we even lathered up her hair. I would have to say that having her hair washed by far was her favorite part. While washing her lower body she made some really rotten faces but when I lathered up her precious little head she was very serene. She even liked having her hair rinsed. Just after we finished washing her and the Nurses were in mid bed change she decided to poop (almost in the nurses hand). That's our little stinker!

Today Sophia also had a head ultrasound and echo cardiogram. The results of both of them were awesome! The Echo Cardiogram is how they measure her Pulmonary Hypertension (blood pressure in her lungs). Last we had heard she was at 107% and usually they wait until the Hypertension is under 80%. Today when they measured her hypertension was down to 70%. They now believe that she might have her surgery early next week, as long as she stays good over the weekend. This is both very exciting and scary news.

Liam is still doing very well staying with us here at "Ronald's House" as he says it. Every time he walks by the Ronald McDonald statue sitting on a bench outside of the house he runs up to Ronald and gives him a big hug and says thank you Ronald. It's amazing that even our 2 1/2 year old can see how wonderful this place truly is. I can't blame him though, there is a toy room where you can walk through the wall to get in it (a.k.a a special circle kids entrance in the wall), Our Room is across from the "ICE" (a kids theater that is shaped like a pond), not to mention all of the kind volunteers and staff who Liam believes are friends put there just for him.

Paw Paw came today and got to meet his new little granddaughter. Paw Paw , Maw maw and Liam will head back to Michigan tomorrow and will visit again soon. Sophia told me she really enjoyed seeing all of them and she told me she will re coop from her surgery quickly so they can come back real soon!

Sophia after her bath.

Liam at Bass Pro shop