Sophia had more meds removed today and also had her Repogal tube removed (tube that went in her nose and down into her stomach that removed extra stomach acids). Slowly each day something changes and we are once again playing the what's missing game. She seems to be tolerating the daily tweaks and we hope that she'll continue to tolerate them.
Today while at her bedside the charge nurse stopped in to check on Sophia it was really cool to hear her say how's our Superstar doing? To hear her say that really told us how well Sophia is really doing.
That is wonderful Tonya!!! She is one tough little cookie isn't she?!
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