Baby steps and Butterflies

If we have learned anything in the RCNIC it is patience. Nothing is set in stone until it is done. Sophia's Upper GI was suppose to happen today but due to a heavy schedule in the office that does them her Upper GI could not be scheduled until tomorrow. So tomorrow morning she should take her field trip and once the doctors have the results we should find out what the "plan" is.

You can see from today's picture that she is doing quite well, nurses who haven't seen her in a couple of days said today that she looks the best she ever has, not only that but she is so content. If it was not for the tubes on her face and scar on her belly you'd never think that she needed a tune up. Although she did not have her Upper GI today she did have her sedation medicine and oxygen completely weaned. I would think that she should have the nasal cannula (clear tube you see by her nose) removed some time soon although if she needs another procedure to help her be able to eat I would think that she could be back on oxygen some time soon.

This afternoon Liam, Maw maw and I got to slip away to see the Butterfly show at the Krohn Conservatory. It was really neat. Liam loved running though the show and a butterfly decided that it liked Liam too, the butterfly landed right on his forehead. I think the butterfly liked it more then Liam did.