Who would have thought that eating would be such a hard thing? When we were told that eating could be the hardest part we really did not think about to what extent they actually meant. In several blog posts I have talked about the tube that was placed in Sophia's stomach,and intestine. You might remember that it moved yet again yesterday so today she went for another field trip to have placed again. The Radiologist said that this was his last attempt at placing the tube and if it failed the doctors would have to look into why it was it was hard to place and why it moved.... Ok at this point some of you might be worrying about her nutrition if the feeding tube is failing what is she living on? Well that's the easy question to answer...Since Birth she has been on two different things called TPN and Lipids. She is still on them and with the feedings currently stopped to figure out what's going on her TPN and Lipids have been increased to sustain her. TPN is basically electrolytes its a yellow sticky substance, Lipids are basically fats, both give her needed calories and both are given to her through something called a Pic line (with is basically an IV line). So currently we are waiting to hear from the doctors what the next step is. Most likely the doctors will check to see if there are any kinks in her intestine or is there are any valves in her stomach that aren't working right. She could possibly also need a different type of feeding tube. We are told that is is not uncommon for CDH-ers to have these types of problems and that they are very fixable, it just takes a little time to figure out what the best treatment is.
I also should mention that she is still down to just one little glowing red oxygen sensor, it moves in between her hands and feet about every 4 hours. This is done to help prevent sores. So some times you'll see it on her hand and some times you won't.
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