This morning Sophia had her first taste of food. Since she has never had a bottle we started with baby steps. The Speech theripist had me dip Sophia's Pacifire in some formula I put it close to her nose so she could smell it and then placed it on her lips. The formula dripped on to her lips, she licked it, made a face then kind of gagged. She then got the hiccups and proceeded to fall asleep. Gagging is not uncommon, it just shows us that getting her to take a bottle is going to be a slow process. The Speech therapist visited Sophia's bedside three other times to try again but she was contently sleeping each visit, so we'll try a taste again tomorrow. The doctors upped her g-tube feeds again today as well, her feeds are now increasing 1ml every 6 hours and as of 8pm she was up to 5 ml per hour. The doctors also said that I should learn how to clean her g-tube and give her, her meds. We are also going to start trying to establish a daily routine for her. This evening Maw Maw and Liam visited with Sophia for a while. She snoozed the whole time. While visiting Liam likes to play with her mobile and also color the coloring sheets that the family life specialist leaves behind for him.
Thursday, May 27, 2010
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