By now you all know our little Sophia and all of her medical procedures. Now we are going to introduce you to her support. The first machine you see below is her Nitric Machine. This is what they use to keep her pulmonary hypertension under control. She was off this machine once already but as part of her surgery was put back on it to control her hypertension since they could not administer the other hypertension medicine while she was having surgery. The Nitric machine is one of the first machines/pumps we'll see go. Then next picture is her medicine pumps. The five pumps administer antibiotics, sedation medicine, pain medicine, Lipids and TPN. The last picture is the respiratory machine. It initiates breaths for her when she is to sedated to do it herself. As you would imagine with such a lengthy surgery she has been pretty sedated the last day and a half to help her with the pain. Another reason she is sedated is because it is not really nice to have the respirator in. Think about how you would like to be fully awake and have the respirator tube down your throat...MMM that's not my idea of fun. All of these machines need to go away before we head back to Michigan. The good news is that they should go away faster then they did last time, but it all depends on how Sophia reacts to the changes. If there is anything that we have learned about CDH'ers is that you have to take it slow because they don't really like fast change.
By now you all know our little Sophia and all of her medical procedures. Now we are going to introduce you to her support. The first machine you see below is her Nitric Machine. This is what they use to keep her pulmonary hypertension under control. She was off this machine once already but as part of her surgery was put back on it to control her hypertension since they could not administer the other hypertension medicine while she was having surgery. The Nitric machine is one of the first machines/pumps we'll see go. Then next picture is her medicine pumps. The five pumps administer antibiotics, sedation medicine, pain medicine, Lipids and TPN. The last picture is the respiratory machine. It initiates breaths for her when she is to sedated to do it herself. As you would imagine with such a lengthy surgery she has been pretty sedated the last day and a half to help her with the pain. Another reason she is sedated is because it is not really nice to have the respirator in. Think about how you would like to be fully awake and have the respirator tube down your throat...MMM that's not my idea of fun. All of these machines need to go away before we head back to Michigan. The good news is that they should go away faster then they did last time, but it all depends on how Sophia reacts to the changes. If there is anything that we have learned about CDH'ers is that you have to take it slow because they don't really like fast change.
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