Ready for her first movie debut

Sophia did well again over night although she has been a little more fussy then usual. Being all that she has been through in two short months you'd probably expect her to be crabby. But honestly she is really content most of the time, she soaks in everything that is around her. The nurses are amazed how content she is, they say alot of CDHers are pretty crabby. As you have all read Sophia has been on pain and sedation medicine for a good chunk of her life thus far and we believe that she was having a little trouble with being off of it. Now when I say this I sincerely mean just a little trouble, nothing to worry about. We noticed that she was dry heaving sometimes and that when she moved her arms or legs that they had a slight shake. These things coupled with her fussiness and not sleeping well told us that she needed a little medicine to help her. She seemed much happier since they gave her some. She is also very close to being able to start feeds, we are hoping that she will have them started by Thursday.

Tomorrow she will quite literally make her first movie debut, we have been asked to participate in a video shoot about Cdh'ers. I will be interviewed about the whole experience and they will also take some footage of Sophia in the RCNIC. The video will be used to help people understand CDH and also help bring people to this amazing Hospital. We are really excited and honored that we can be a part of this endeavour.